Community Networks Newsroom

Surrey Place Centre launches new program developing resources and tools for primary care providers

Bridging gaps between research and practice in the primary care of adults living with
intellectual and developmental disabilities
Surrey Place Centre launches new program developing resources and tools
for primary care providers

May 1, 2018, Toronto –Research involving adults living with intellectual and developmental disabilities (IDD) reveals gaps between their health needs and the primary care they often receive. These gaps can lead to hospitalization and repeat emergency department visits. Appropriate and timely primary care can prevent physical and mental health conditions from developing or becoming more severe, and offer continuity of care and a more person-centred health care experience.

It is important that family physicians and other primary care providers have access to information about how to adapt health care to the specific needs of adults living with IDD. Navigating health care can be challenging for young adults with IDD who are transitioning from pediatric care to an adult healthcare system that is less oriented to their needs. Increased training and education of primary care providers in identifying physical and mental health needs and in proactive transition planning enable them to play an important role in these transitions.

Adults with IDD should receive primary care that meets their specific health and developmental needs. Surrey Place Centre is committed to bridging the gaps between research and practice in primary care for adults with IDD and as a result has launched a new program that develops, publishes and promotes clinical practice guidelines, tools and other resources for primary care providers. The Developmental Disabilities Primary Care Program, funded by the Ontario Ministry of Health and Long-Term Care and the Ministry of Community and Social Services, will serve as a credible online resource for primary care providers.

The launch of this program coincides with the publication of the Primary care of adults with intellectual and developmental disabilities: Canadian consensus guidelines in the April 2018 issue of the Canadian Family Physician journal. These guidelines offer important background regarding specific physical and mental health care needs of adults with IDD and recommendations for patient and caregiver-centred approaches to care; preventative care assessments; and interventions. The guideline recommendations are based on recent Canadian population-based data, empirical research, clinical knowledge, as well as knowledge of the contexts of care of adults with IDD. Moreover, the experience of adults with IDD and their caregivers was also included in developing the recommendations.

Developing and disseminating online resources for family physicians will help them to care for adults living with IDD and meet their physical and mental health care needs. However, improving care will require addressing further gaps in research, developing more practice tools and enhancing the education and awareness of IDD in the health professional curricula such as medicine, nursing, social work and other allied health professionals. The Developmental Disabilities Primary Care Program of Surrey Place Centre will continue to bridge the gaps between clinical guidelines and practice.

For more information, please visit: http://ddprimarycare.surreyplace.ca/.

What’s Love Got To Do With It – SAVE THE DATE – June 1st, 2018

What’s Love Got To Do With It

Save the Date – June 1st, 2018  9:30 – 5:00 pm in Dunnville, ON   $15.00 per person (for ages 18+)

Workshops on dating in today’s world and feeling confident in your sexuality. A speed dating session will end the day.  Keynote speaker is consultant Ruth Fisher from Race4Romance.

Stay tuned for more information on registration coming in April 2018.

See flyer attached   Voices Unlimited – June 1 2018 – whats love got to do with it – save the date

Consensus Guideline 28, Supporting People Showing Sexually Inappropriate Behaviour.

December 14, 2017 @ 10:00 am - 12:00 pm - The Consensus Guidelines for Best Practices, developed in 2016 by the Community Networks of Specialized Care, represent essential elements that guide Ontario’s developmental services providers when the people they support show behaviours that seem to indicate distress. The CNSC is pleased to offer this 3rd event, focusing on Guideline 28, Supporting People Showing Sexually Inappropriate [...]

…Linking UP…A Provincial Self Advocates Network Presents Kory Earle on: The Journey of the “R” Word

REMINDER!!…Linking UP…A Provincial Self Advocates Network Presents Kory Earle on: The Journey of the “R” Word on November 24th, 2017

Kory Earle, President of People First Canada will be presenting “The Journey of the “R” Word” via videoconference on November 24th, 2017.

For more information see the Events Calendar on this website or visit the following link: http://www.community-networks.ca/events/linking-up-a-provincial-self-advocates-network-presents-kory-earle-on-the-journey-of-the-r-word/ 

More details can also be found on the …Linking UP…videoconference page and also by viewing the flyer:
2017-11-24 Journey of the R word – Kory Earle.

10th Annual SNSC Research Forum: October 2nd, 2017

10th Annual SNSC Research Forum:  October 2nd, 2017

The 2017 Research Forum was convened on Monday October 2nd, at Woodstock and District Developmental Services with tasty catering by The Taste of Woodstock, and social enterprise company that is supported by people with developmental disabilities. About 50 people gathered to hear a stellar line up of speakers and presenters from across the region including Dr. Olena Darewych, Registered Psychotherapist and Canadian Art Therapist who shared her research findings about the awakening of art skills within people with disabilities, and many others whose PowerPoint presentations can be found on the Special Events page under the Research Tab: http://www.community-networks.ca/research/special-events/

pictures of Research Forum

10th Annual Southern Network of Specialized Care Research Forum

10th Annual Southern Network of Specialized Care Research Forum – October 2, 2017

Featuring Olena Darewych, PhD on Awakening Imagination in People with Developmental Disabilities and other Regional and Network updates.

Also presenting is Sue Hutton and Peter Park on “The Real Stories: Research that Draws and Talks”: Sharing the journey toward co-authorship & accessible research through art and other media.

Please see flyer for more details:

Save the Date Registration Research Forum 2017 final

 

10th Annual Southern Network of Specialized Care Research Forum

October 2, 2017 @ 8:30 am - 4:00 pm - 10th Annual Southern Network of Specialized Care Research Forum Featuring Olena Darewych, Phd of Wilfred Laurier University presenting on "Awakening Imagination in People with Developmental Disabilities" as well as Updates from other regions and networks. Also presenting is Sue Hutton, MSW & Co-Researcher,  Peter Park Co-Founder of People First of Ontario on "The Real Stories; [...]

SNSC Health Care Facilitators Tom Archer and Cindy Chatzis present at AAIDD’s 2017 conference held in Hartford, CT this past June.

SNSC Health Care Facilitators Tom Archer and Cindy Chatzis present at AAIDD’s 2017 conference held in Hartford, CT this past June.

At their presentation, Tom and Cindy described the role of the healthcare facilitator, identified and disseminated some major research that delves into health care usage by people with intellectual disabilities, shared resources that have come out of this research and other projects aimed at educating health care providers and described where we have focused our attention for the greatest gains.
They also shared a number of projects that have been facilitated by health care facilitators to build relationships and practices between hospitals and community providers in the developmental service sector.
These projects include the development of a process map and protocol with a major health centre to reduce ALC (Alternate level of Care) length of stay and build accountability to take action and plan for transitional discharge by both the hospital and the community service sector, a regional partnership and plan for managing crisis to minimize hospital admissions and increase capacity of community agencies to manage difficult behavioural and psychiatric challenges and touch on other cross sectoral, collaborative projects involving health centres, universities and community services aimed at providing curriculum on and exposure to people with developmental disabilities for health care students and improving health outcomes among this population.

Please take a look at their presentation, click below to view:

AAIDD June 2017 Presentation

2017-06-28 - AAIDD 2

10th Annual SNSC Research Forum 2017

Save the Date:  October 2nd, 2017  for the 10th Annual SNSC Research Forum

Featuring Olena Darewych, PhD on Awakening Imagination in People with Developmental Disabilities and other Regional and Network updates.

Also presenting is Sue Hutton and Peter Park on “The Real Stories: Research that Draws and Talks”: Sharing the journey toward co-authorship & accessible research through art and other media.

Please see flyer for more details:

Save the Date Registration Research Forum 2017 final